More waiting :(

Sorry for the lack of updates, not much to tell as yet. I’ve spent a lot of time on the phone since our appointment last week and we now have three different hospitals communicating about next steps, which is fantastic. I sense nothing will move quickly and we have lots more waiting to do…but there’s a lot of very smart people on the case so we’re feeling pretty positive for now! Henry’s ok, had some skin irritation and been a little quiet since his hepatitis jab last week but all good otherwise 👌 x