A singing boy at Hospital

Busy few weeks of appointments with more to come. We saw the dietician after Henry’s transfusion last week, hopefully she will help us get Henry more comfortable eating different foods. Henry sung his was through a two hour eye appointment this morning, a regular check up for him as the medication he has pumped in each night can damage your eyesight. Then, off to London later this week for another liver scan to check whether the pump is working to strip the iron out. So brave, so proud  #DBAlife