Some great news

Despite a minor hand cream incident 🤔, today has been a good day! Had the results of Henry’s last liver biopsy and in their words, they’re “not too bad”! They use a scale ranging from 0-6 (good to bad) to determine liver scarring and Henry’s currently sitting at 2. They said that if we carry on with the nightly pumps and they work for him, the scarring that’s there should be reversible! We won’t know if they’re working for a few months yet but we’re cautiously optimistic🤞💪💓

Happy 2nd Birthday Henry!

Happy Birthday Henry!!!

Two years old today and what a two years they’ve been. This time two years ago, the hospital had me in for monitoring every 1-2 days because Henry had failed every test they’d done on him and they were pretty worried about him. This was supposed to be a much anticipated non-hospital, ‘rest’ day but some time that morning I’d realised he wasn’t moving so back to the hospital we went. A few hours (and a quick thinking consultant and emergency c-section) later, Henry was here! They said good job too, otherwise he wouldn’t have survived as he had so little blood left in him. I didn’t get to see him at all the day he was born, we were both too poorly  but the NICU staff were super and gave me a photo of him. They said it was 50/50 whether he survived (he’d already overcome 20% odds so we knew he could do it ) and the rest is history.

30 blood transfusions, more hospitals, needles, biopsies, tests and medication than you can shake a stick at, but still going strong and absolutely loving life. He’s so much more than DBA though, he’s our absolute joy and the only reason we need to get up every day

Please share this post, we need to get it to as many people as possible to get Henry the help he needs and his chance for a better future.

#happybirthday #giveblood #DBAstrong

Our first milestone reached, £15,000 raised this weekend!

Oh, hello £15,000, we’ve been waiting for you 😁! Well, we’re officially up to target no.1, we have enough to get our name down for the first cycle of IVF. We are so chuffed, a huge thank you to everyone who has helped us along the way so far. We’ll be on the phone to the clinic first thing on Monday to get us booked in! 💃🍷🎉